Monday, December 30, 2013

A little late but here is an update

My visit to the Cleveland Clinic was an amazing experience. I have never been to such a professional and well organized medical facility.
My primary internal medicine doctor is located in an office building across the street from the main clinic and hospital. She actually listened to what had already been done and what my concerns were. Based off of the information I provided, she decided that a trip to the cardiologist was the most important appointment. She also decided that a visit to oncology was also important because she did not like the lack of detail in my reports from my oncologist visits in Tampa.
I was a little disappointed in the amount of time it took for getting into the schedules but it was not too bad since I was using my vacation time and the extra rest was probably good for me.
I met the cardiologist, who specializes in a concentration of diabetics with cardiac disease. He jumped right on my concerns that I had about something still being wrong with my heart and the possibility that it had been damaged during my two procedures. He ordered a CAT of my heart which required that my heart rate be lowered. I can honestly say that was scary. I also never, EVER, want to have to take a nitro pill again. They used that to open all of my arteries for the scan. The scan came back showing no thickening of the walls, no plaque build up, and no damaged areas. He felt confidant that my heart is not behind the pain.
Unfortunately, the scan did come back with a report that I have something in my right breast. The most concerning part of the report is that I apparently have "innumerable" lymph nodes.
So, I am scheduled to see the oncologist on January 23rd. I do not plan on staying down there over night unless they want to do testing that can be done the next day. I can't afford another hotel bill like the first one on top of my deductible and copays.

So, there is the short version of my first visit.

I am still experiencing chest and arm pain. I am not freaking out over it as much now. I am still having my weak/dizzy spells, though they have not been too bad over the past week. I have, unfortunately been very sick to my stomach over the last couple of days. I'm taking the heartburn medicine but it hasn't helped with the other problems. I finally caved in and bought something to stop my having to run for the bathroom. Sadly, this seems to have made the nausea worse.
I am coping as best that I can. I am hoping to have some answers by the end of January as to what it IS and not just what it isn't.

Monday, December 9, 2013

Am I ready?

I think I have everything packed. Just need to load it into the car in the morning and fill up the tank.

I've had my usual bouts of pain and stomach problems. Right now I am having sharp pains behind and below the left breast. It isn't heartburn. I took my pill earlier. This feels different from any heartburn that I have ever had. Nausea has set in, back and shoulder pain. I just want some rest. 

Hoping Tuesday brings some good ideas and plans. 

Thursday, December 5, 2013

Excited but nervous

Tuesday is my appointment! I'm getting kind of nervous. I don't want to be told again that they can't find anything wrong and sent on my way without them looking at what else could be making me so sick.

The last few days have sucked. The pain has come and gone. The worst part is the not being able to sleep. I keep feeling like something is wrong. I'm always afraid that I won't wake up.

Today was pretty bad. Not only did I have pain in my chest but my shoulder and arm were pretty bad too. And of course there was the nasty headache. And then the upset stomach. The stomach issues are still lingering. I'm just trying to cope with it as best I can. And now it is not just an "upset" tummy. The vomiting has started. I'm hoping it is just one of those things and not a stomach bug or like it was last year with the six weeks of being sick.

I am flat out exhausted. I'm trying to make sure everything is ready at work for me being gone.

Tuesday, December 3, 2013

Another one of those nights

Last night was another one of those nights where I had trouble sleeping. I kept feeling like something was wrong with my heart. It felt like it wasn't pumping right. I know that may seem silly but it is the only way I can describe it.
I had pain through my left side again around the lower ribs and under my arm.
It was one of those days again where nothing agreed with my stomach. I felt sick every time I thought about eating and when I did eat my stomach got upset. 
I am making more of an effort to control my sugar. I know it could be adding to my health problems. It is hard to eat healthy all of the time and I honestly want to binge on chips and chocolate because I am getting so frustrated with my overall health. I know that will just make it worse though so I am making an effort to ignore those urges. 

Sunday, December 1, 2013

One week to go

I have one more week to get through before my visit to Cleveland Clinic in Weston, FL. I'm excited and scared at the same time. I don't like being poked with needles and all that but if that is what it takes, I will do it. I'm scared that they may try to just give me some medication without fully getting to the bottom of my health problems and then expect me to just come back after a month or so. I can't do that kind of stuff anymore. I will not just take some medication to see if it makes things better. I want to know what is actually wrong. Why I keep getting dizzy, feeling weak and all the rest.