Crying won't help but sometimes...

I know crying doesn't help but sometimes you just have to. I know asking won't give me answers, but why me?
Eating hurts. It doesn't matter if it is just applesauce or yogurt. My stomach literally hurts. It isn't just nausea or gas. It hurts. My whole abdomen gets rock hard. Sometimes I get gas. Sometimes I vomit. But not until after the pain. I've tried eating slower but most of the time I eat so little that I don't know that it makes any difference.
I'm having another one of those weekends stuck at home. I honestly feel as if leaving my apartment would be dangerous. I'm dealing with the stomach pain, pain in the rest of my body, the headache, the dizzy spells and the overall feeling of just being sick.
I hate this. Why me? I know it doesn't do any good to ask but I can't help it.

Latest update from July visit

I had to get some paperwork completed for work so I got to see my pulmonary specialist again. It was actually a necessary trip since I have been having more problems breathing and have been coughing up stuff over the last few weeks.
The stuff that I am coughing up is not coming from my lungs. My doctor said that I sound clear. I'll have to see an ENT but I can do that here.
I had/have appointments in August with the new cardiologist, rheumatologist, and neurologist. When I got home I found a letter saying my cardiology appointment had been rescheduled. So now I have to work on rescheduling everything since I can't afford to stay down there three days.
My pain level has been off the chart today. I was so close to breaking down and crying several times at work today. I know I am having to use the heavy painkillers more often than I want because they no longer make me goofy or hyper.
I need something to change and change soon. I really don't know how much longer I can continue like this.

Update 6/5/14

It has been a while and a lot has happened.

The oncologist that I saw in January was the breast cancer specialist. In other words, the wrong doctor. I finally got in to see another oncologist and a pulmonary specialist. Both were amazing doctors. The oncologist agreed with the sarcoidosis diagnosis. She suggested a bone marrow biopsy but was pretty certain that it is most likely there. The pulmonary specialist blew me away though. Scans of my chest showed the extra lymph nodes every where including my lungs.
I am now working on seeing a few more doctors, including a neurologist. I have been having strange sharp pains, burning in my ears, headaches, and dizzy spells.
I am also going to see the cardiologist again. My SVT is back. It got me an ambulance ride from work.
Hoping for answers and to feel normal soon.

Back to the Cleveland Clinic

I'm back down South in Weston, FL. I have my appointment with the oncologist tomorrow. I'm really stressed out. I'm exhausted from the ride down. My pain has kicked in double time. I'm nauseas and my head is pounding. I just want answers. I want the pain to stop. I want the feeling sick to go away.

Update 1/9/2014 Same old stuff

I had major chest, shoulder and arm pain last night. It made me nervous about driving home but I made it. The pain just seems to be getting worse. I'm tempted to ask my doctor for something to help control it but I'm afraid of just masking the symptoms. 

Today has brought more pain though not as intense. Heartburn medication does nothing for it. I'm 100% certain that it is not from my digestive tract.

Two more weeks until my appointment with the oncologist at the Cleveland Clinic. I just keep telling myself that I can make it until then.

Happy Saturday I think not

Back to being sick. I have been dealing with a sore throat for a few days. Mild fever, but not bad. My head is pounding though. It is actually pretty bad right now. The nausea has not gone away. I have no appetite and have been forcing myself to eat. I am still having low sugars because of it. My arm is a horrible pain right now and my chest is hurting.
I am feeling down. I wouldn't call it depressed, just down. I feel like this will never get better. I just want the pain to stop. I could deal with the nausea if I didn't have so much pain.
I am not looking forward to my next appointment but at the same time I am. I just want answers that will finally lead to a treatment or solution.

I just want to get better

So here I am on Monday night. The chest pain, arm and shoulder pain...same old same old. Some of the pains in my chest would have sent me to the emergency room if I hadn't already known that my heart is not the problem.
I have been very sick to my stomach for three days now. I am back to the diarrhea and vomiting. I have just about no appetite until I am absolutely starving and even then I have trouble eating.
I am so very tired of all of this. I just want to get better. I want to have a normal life.