Update 6/5/14

It has been a while and a lot has happened.

The oncologist that I saw in January was the breast cancer specialist. In other words, the wrong doctor. I finally got in to see another oncologist and a pulmonary specialist. Both were amazing doctors. The oncologist agreed with the sarcoidosis diagnosis. She suggested a bone marrow biopsy but was pretty certain that it is most likely there. The pulmonary specialist blew me away though. Scans of my chest showed the extra lymph nodes every where including my lungs.
I am now working on seeing a few more doctors, including a neurologist. I have been having strange sharp pains, burning in my ears, headaches, and dizzy spells.
I am also going to see the cardiologist again. My SVT is back. It got me an ambulance ride from work.
Hoping for answers and to feel normal soon.

Back to the Cleveland Clinic

I'm back down South in Weston, FL. I have my appointment with the oncologist tomorrow. I'm really stressed out. I'm exhausted from the ride down. My pain has kicked in double time. I'm nauseas and my head is pounding. I just want answers. I want the pain to stop. I want the feeling sick to go away.

Update 1/9/2014 Same old stuff

I had major chest, shoulder and arm pain last night. It made me nervous about driving home but I made it. The pain just seems to be getting worse. I'm tempted to ask my doctor for something to help control it but I'm afraid of just masking the symptoms. 

Today has brought more pain though not as intense. Heartburn medication does nothing for it. I'm 100% certain that it is not from my digestive tract.

Two more weeks until my appointment with the oncologist at the Cleveland Clinic. I just keep telling myself that I can make it until then.

Happy Saturday I think not

Back to being sick. I have been dealing with a sore throat for a few days. Mild fever, but not bad. My head is pounding though. It is actually pretty bad right now. The nausea has not gone away. I have no appetite and have been forcing myself to eat. I am still having low sugars because of it. My arm is a horrible pain right now and my chest is hurting.
I am feeling down. I wouldn't call it depressed, just down. I feel like this will never get better. I just want the pain to stop. I could deal with the nausea if I didn't have so much pain.
I am not looking forward to my next appointment but at the same time I am. I just want answers that will finally lead to a treatment or solution.

I just want to get better

So here I am on Monday night. The chest pain, arm and shoulder pain...same old same old. Some of the pains in my chest would have sent me to the emergency room if I hadn't already known that my heart is not the problem.
I have been very sick to my stomach for three days now. I am back to the diarrhea and vomiting. I have just about no appetite until I am absolutely starving and even then I have trouble eating.
I am so very tired of all of this. I just want to get better. I want to have a normal life.

A little late but here is an update

My visit to the Cleveland Clinic was an amazing experience. I have never been to such a professional and well organized medical facility.
My primary internal medicine doctor is located in an office building across the street from the main clinic and hospital. She actually listened to what had already been done and what my concerns were. Based off of the information I provided, she decided that a trip to the cardiologist was the most important appointment. She also decided that a visit to oncology was also important because she did not like the lack of detail in my reports from my oncologist visits in Tampa.
I was a little disappointed in the amount of time it took for getting into the schedules but it was not too bad since I was using my vacation time and the extra rest was probably good for me.
I met the cardiologist, who specializes in a concentration of diabetics with cardiac disease. He jumped right on my concerns that I had about something still being wrong with my heart and the possibility that it had been damaged during my two procedures. He ordered a CAT of my heart which required that my heart rate be lowered. I can honestly say that was scary. I also never, EVER, want to have to take a nitro pill again. They used that to open all of my arteries for the scan. The scan came back showing no thickening of the walls, no plaque build up, and no damaged areas. He felt confidant that my heart is not behind the pain.
Unfortunately, the scan did come back with a report that I have something in my right breast. The most concerning part of the report is that I apparently have "innumerable" lymph nodes.
So, I am scheduled to see the oncologist on January 23rd. I do not plan on staying down there over night unless they want to do testing that can be done the next day. I can't afford another hotel bill like the first one on top of my deductible and copays.

So, there is the short version of my first visit.

I am still experiencing chest and arm pain. I am not freaking out over it as much now. I am still having my weak/dizzy spells, though they have not been too bad over the past week. I have, unfortunately been very sick to my stomach over the last couple of days. I'm taking the heartburn medicine but it hasn't helped with the other problems. I finally caved in and bought something to stop my having to run for the bathroom. Sadly, this seems to have made the nausea worse.
I am coping as best that I can. I am hoping to have some answers by the end of January as to what it IS and not just what it isn't.

Video update from 12/9/13